Donate to Moyamoya Research, Patient Care and Education

Patients with Moyamoya disease exhibit blocked arteries in the basal ganglia (the area at the base of the brain). Discovered in the 1960s in Japan, Moyamoya literally means “puff of smoke” in Japanese because of the look of the tangled blood vessels that form in the brain due to blockage. Moyamoya is most common in Japan but also affects children and some adults in the United States, Europe, Africa and Australia.

The first symptoms of moyamoya disease affect children and adults differently. Children with Moyamoya will usually experience a stroke or transient ischemic attack (TIA) where adults with this disease most frequently endure a hemorrhagic stroke. Other symptoms of Moyamoya disease include vision problems, involuntary movement, sensory impairment, cognitive impairment, speech disorders and disturbed consciousness. Because of its progressive nature, people with Moyamoya will have multiple strokes until treated. The mental decline will continue due to the narrowing of the arteries in the brain. Ultimately, left untreated, Moyamoya can be fatal. With your generous donation to Northwestern Memorial Foundation, patients with this devastating disease will be provided opportunities for leading-edge surgeries so that they can live their life to the fullest.

Genetics may be a piece to the puzzle in determining the causes of Moyamoya disease. Moyamoya disease has a tendency to run in families, and scientists at Northwestern Medicine are dedicated to finding abnormal genes that may cause this disease. There is still much to learn about Moyamoya and with your donation, scientists at Northwestern Medicine can continue to conduct research to provide the best care and treatments.

At this time, the only effective treatment for Moyamoya disease is surgery. Narrowed blood vessels can be opened or arteries unblocked through revascularization surgery. Though invasive, this surgery is extremely effective in children and ends stroke and related complications of the disease. Clinical trials and investigations are continually being conducted to find new ways to prevent, treat and cure Moyamoya disease. Your gift to Northwestern Memorial Foundation will provide the funds needed to cure this progressive disease.

Northwestern Medicine specializes in neurological care and provides care for the treatment of many neurological disorders including Moyamoya disease. Multi-modal treatments, advanced diagnostic imaging and rehabilitation are provided for patients with the cerebrovascular disease through Northwestern Medicine’s Comprehensive Stroke Centers. At the stroke centers, physicians have expertise in neurology, neurosurgery, diagnostic imaging, neurological rehabilitation and interventional neuroradiology. Gifts from donors like you help maintain and modernize the care and treatment patients with Moyamoya receive through the stroke centers.

Moyamoya Disease Research, Patient Care and Education Donation

The course of treatment of a patient with Moyamoya disease can determine the difference between life and death. Donations to Northwestern Memorial Foundation will give people with Moyamoya disease the chance to live. Through your donation to Northwestern Memorial Foundation, scientists will learn more about this rare disease and patients will receive excellent care to acquire the relief they need. Help Northwestern Medicine fight Moyamoya disease with your generous contribution.

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