Donate to Frontotemporal Dementia Research, Patient Care and Education

Frontotemporal dementia is a type of dementia that starts at a young age and affects social behavior, insight and reasoning. Unlike other types of dementia, frontotemporal dementia does not typically impair memory until the disease progresses to other parts of the brain. It is not uncommon for frontotemporal dementia to be confused with a psychiatric disorder because of the symptoms associated with it. These symptoms include personality changes, the inability to concentrate and lack of motivation.

At Northwestern Medicine, patients with frontotemporal dementia receive exceptional, compassionate care from highly-skilled physicians. By making a donation to Northwestern Memorial Foundation, you will help to ensure that this outstanding care continues to touch the lives of patients and families who are coping with frontotemporal dementia. Furthermore, scientists at Northwestern Medicine are committed to learning more about this disease through groundbreaking research. Your generosity will help to provide these investigators with the resources to continue their research and to make strides toward curing frontotemporal dementia.

Because of the early age of onset, frontotemporal dementia can present many challenges for a patient and his or her family. When a person develops symptoms of dementia earlier in life, caring for one’s children, working effectively at a job and managing finances all become exceedingly difficult. Many of the symptoms of frontotemporal dementia can be embarrassing, leading to the loss of friends and support. It also can be difficult to find residential care for people with frontotemporal dementia because many of the available programs are designed for older individuals with conditions such as Alzheimer’s disease.

At Northwestern Medicine, a team of specialists can help families navigate the process of receiving, and coping with, a diagnosis of frontotemporal dementia. This process includes steps such as:

  • Obtaining a psychiatric evaluation
  • Sharing information about the disease with family and friends
  • Encouraging the patient to attend an early stage support group
  • Meeting with an attorney to ensure the Power of Attorney forms have been completed.
  • Attending caregiver support groups
  • Maintaining good physical and mental health for both patient and family through regular check-ups, exercise and healthy eating

Many patients and families affected by frontotemporal dementia seek the expert care that is delivered by the specialists at Northwestern Medicine’s Neurobehavior and Memory Clinic. These specialists–comprising behavioral neurologists, neurophysiologists, neuropsychiatrists and licensed social workers–offer diagnostic, therapeutic and supportive services to patients and families.

These services include:

  • Evaluation of memory and other diagnostic tests
  • Psychiatric evaluation and treatment
  • Follow-up care
  • Counseling and support groups
  • Opportunities to participate in leading-edge research for frontotemporal dementia

Frontotemporal Dementia Research, Patient Care and Education Donation

A frontotemporal dementia diagnosis can turn the lives of both the patient and his or her family upside down. You can play a part in ending this devastating disease by donating to Northwestern Memorial Foundation. With your generous gift, Northwestern Medicine scientists will advance research in the area of frontotemporal dementia, in the hopes of developing more effective treatments and, eventually, finding a way to conquer this progressive disease. Please consider making a difference for the many patients and families whose lives are so profoundly affected by frontotemporal dementia.

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