Donate to Chordoma Research, Patient Care and Education

Chordomas are exceptionally rare, slow-growing tumors that occur in the bones of the skull base and the spine. While these tumors affect only one out of one million people, they are malignant and, as a result, are potentially fatal for the individuals affected by them. When chordomas metastasize, they tend to affect other bones and/or the lungs, but, in some cases, they spread to other critical organs, such as the liver, the heart and the brain.

By making a donation to Northwestern Memorial Foundation in support of chordoma-related research and care at Northwestern Medicine, you will help our scientists and physicians to conduct leading-edge research studies and clinical trials, and to make strides toward better understanding, diagnosing and treating chordomas.

Surgery is the primary treatment for chordomas, with the goal being to remove as much of the tumor as possible without causing harm to surrounding tissue and organs. For some patients, radiation therapy can reduce the risk of tumor recurrence after surgery and can prolong survival. However, for patients who are not candidates for surgery, radiation therapy is sometimes used as the primary treatment. Because of chordomas’ proximity to vital anatomy such as the brain and spinal cord, which cannot tolerate high doses of radiation, specialized forms of radiation are used to focus radiation directly on the tumor while avoiding surrounding tissue.

At Northwestern Medicine, expertly trained specialists–including neurosurgeons, orthopaedic surgeons, radiation oncologists, medical oncologists and rehabilitation specialists–work together to provide each patient affected by a chordoma with the most effective and most individualized treatment available. Your donation to Northwestern Memorial Foundation will provide crucial support to these dedicated care providers as they strive to ensure that Northwestern Medicine remains at the forefront of the most advanced and most promising treatment approaches for chordomas.

While it is not common for chordomas to reappear after surgical removal, sometimes these tumors do return. In these cases, treatment may involve surgery to remove the newly developed tumor and/or radiation and chemotherapy. In addition, if a person is affected by a reoccurring chordoma, he or she may be eligible for a clinical trial and certainly should discuss this option with his or her care team.

Chordoma Research & Care Donation

By making a donation to Northwestern Memorial Foundation, you will help to advance essential clinical trials, as well as other research studies and efforts to enhance treatments for chordomas, at Northwestern Medicine. Your generosity will help to ensure that, at Northwestern Medicine, people affected by chordomas will always find state-of-the-art care, exceptionally skilled and compassionate care providers, and hope for the future.

Donate Now